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ALSers I stayed with on my trip

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    As some of you know, I took a long motorbike trip last summer and I stayed with and met heaps of ALSers. Then I disappeared for a long while before popping back up here.

    I have started to write the story of my trip and the impact all the beautiful ALSers I met had on my life. I’m writing the story to share so am posting a few chapters (and photos) a day on my blog as I write them.

    They are a rough unedited first draft that I am sharing because I think stories are best when they are told honestly and from the heart. It’s a long story because I’m telling it like I experienced it. Not the fluffed over brief version a person shares over coffee but the true experience as I wrote it in my travel journal and post cards home.

    The story is not on-topic for ALS per se, but there are so many wonderful people from ALS who will always mean the world to me for opening their homes and lives and making my trip possible.

    Many of you might know that I was in a dark place for a long time before I left – I’m now in a really beautiful place and I am loving life. It was my trip that made that change possible for me and, therefore, each of the beautiful people who showed me love, care and friendship on my trip are responsible in some way for my healing.

    That’s why I want to share my story with you … it’s the only way I know how to thank you all.

    You can either read the stories as I post them at:

    The first post is called ‘Pilgrimage – the call’ and can be found at:

    Or you can read them all in one spot (as I publish them) at: – This is one big long post with all the story in it.


    Please don’t stop writing :kiss::kiss::kiss:


    Aaw – thank you Robyne :hug: :hug:

    Don’t worry – I won’t stop writing. I have a long way to go before the story is finished and I’m trying to get through two chapters of this draft each day.

    And besides, I have to practice for when I get accepted into the Creative Writing degree I applied for. :geek:

    Thank you for reading my story. It means a lot to me 🙂


    and you know that I read it :tup:


    :kiss: Thank you Calliecat :kiss:


    Hi Herby

    All I can say, is wow – that’s a big story. Keep on writing it all out.


    Herby you should have warned me to get the tissues out before I started reading.

    What a brave and wonderful person you are to share this deeply personal story. Thank you.:hug:

    I am looking forward to the next instalment.:tup:


    @ Boonahgirl – It was a big experience. I wasn’t ready to share it before because I still had one last lesson left to learn. But I’ve learned it now and am ready to write about it all.

    @ Michelle-sm – Sorry – I should have warned you. Actually, I needed tissues writing some of the posts. Especially the one about the day I reckon I almost died. That was hard to write. And I always tear up when I think about Jacqueline (who I know is resting in the most beautiful peaceful place).

    Thank you for reading my story. :kiss:


    I really enjoyed your story and part of that was your skilful writing – I liked how you introduced the readers to this “unknown person”, Jacqueline, with only the briefest description of spikey hair and her presence at work and then how a beautiful and fragile connection was made.

    The other story on your bike ride to Casino and the bus trip back was hard to read 🙁 but definitely descriptive of how challenging life can be 🙁

    Looking forward to the next installment!


    Now I am back from my odyssey, playing with the manta rays and whales, I have been reading and loving your writings. You have a talent to get across what’s in your heart, touching all of us who reads it. Please continue, its now become my daily treat to myself.

    Best wishes,



    Thank you for the compliment Gleanert. It was so hard to write the story of my bike ride to Casino and the bus trip home. It was hard to remember that feeling of isolation that I used to feel. Will post two more installments tomorrow – one in the morning and one during the day.

    Oh wow Deb – I can’t wait to hear the stories of the manta rays and whales 🙂 I’m glad you are enjoying my writing. I promise to continue now that I’ve started 🙂


    Ok, you’ve kept me up wayyyy over my bedtime ’cause I couldn’t stop reading. 😉


    :kiss: That’s sweet of you to say Gianna. I’m up waaaayyy past my bedtime writing. I have to get up in about 4 hours time so best call it a night too. 🙂


    Go Andrew! Yes, you certainly have a way with words. Keep going!


    Thank you Jodie. 😀 Am working on those first million words :geek: 😉

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